Thursday, August 17, 2017

Maks' diagnosis

My posts are few & far between during this season of life. I've been soaking up my family time and living more in the moment + binge watching Gilmore Girls every night before bed.

To be honest, I have sat down and tried to write this several times. Part of me wants to explain everything in detail & the other half to just keep it short and sweet.

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Maks has always had some muscle tone problems in his legs. See how his legs and feet are tightened up? He's like that 90% of the time. We started physical therapy almost a year ago to help with that and his immobility.
One thing lead to another and we started seeing his neurologist at Children's hospital. The evaluations were done, an MRI was scheduled & done and then we had a month and a half wait to see these results in more detail. It's aggravating being told your son has spots on his brain stem, but not to be worried.The six week wait was finally up on Tuesday. We showed up, he got evaluated again and the results were shown to us. 
Maks has cerebral palsy. The diagnosis we both, several months ago, assumed he had.
As special needs parents it's something you long for, finally a name for your child's special trait. A name that can help guide us in the right direction for Maks' future.

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Maks also had an EEG done while we were there. For being two, he did so well with this test. 
One more test to go, for now, on Monday. Derek, Maks and I will all be getting a genetics test done with blood work.
The goal is to figure out how/why he has cerebral palsy.

I think I'm going to leave it at that for the moment. Life is going to go on & Maks is going to keep crushing his goals.
You are so loved little boy❤

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