Thursday, April 27, 2017

Neurology update

I didn't want to leave all those that have prayed, sent well wishes & love to Maks here is what we know now.

Last week we took him to children's for a three hour evaluation, which turned into four. He was with PT, OT, speech, psychology and neurology. Everyone did their own thing-- stretching, playing, talking, reading books and snuggling our little guy. Then they came and told us what they saw and how he did and where he's at age wise.
We knew he wasn't on the same level as a 22 month old but it stung a little to hear that Maks was equivalent to an eight month old. He has A LOT of catching up to do and that means increasing PT visits and starting OT and speech.

There is no official diagnosis of anything, yet. If at all (keeping our fingers crossed)
We have a MRI scheduled for June and a follow up visit in July. He had quite a bit of blood work done while we were there too. All of that was normal, just low on iron so we started to give him some vitamins until we can find an iron rich food he likes. Welcome to any ideas on that ;) 

We start speech and OT next week, along with our usual PT..and have to squeeze another PT in there somewhere. Then we just keep doing what we are doing until mid June. 

I posted this on my Facebook a few days ago...on our way home Florida Georgia Line's song came on and it really hit me right in the heart (picture big ugly crying crocodile tears, that was me) No matter what the outcome is for our little Maks, we love our rainbow baby just the way he is.

you better believe my love is
never gonna run dry,
never gonna come up empty
now until the day I die, unconditionally
you know I'm always gonna be here for ya
no one's ever gonna love you more than
God, your daddy, and me

 Image may contain: 1 person, sitting, sleeping and closeup

Wednesday, February 22, 2017

food allergy update

I could sooo get use to easy weeks like these. The boys had Monday off, Derek had until Tuesday off and can we talk about this perfect weather! 

 Image may contain: 3 people, people smiling, people sitting, child and outdoor

Tuesday we got Owen off to school & packed up  the rest of the gang to see the allergy doctor. It was prick test number two for mister Maks. This time he was tested for: cashews, oat, milk, egg, fresh milk, fresh egg, cats, dog, dust mites, and a few grasses and trees.
These allergies are so crazy--you guys, he showed up negative for dogs and cats! 
Remember little miss Luna we had? 

Image may contain: dog and indoor

He should of been okay with her. We are now wondering if it was her food that had an allergen in it to make him react when she licked his face. I guess we will never know....
That was the good news, for future dog purchases ;)  the bad news is those pesky eggs and dairy. I mean we knew that he still would react from them, but we had hopes that he improved slightly. 

 Image may contain: one or more people and closeup

Nope. no improvement. In fact they gave us a prescription for an Epipen. 

So here is my PSA for the day: please do not give my sweet little babe any food/drink without asking Derek and I beforehand.  And pretty please don't think we are rude and snotty for asking you to wash your hands. We just really love our little Maks and never want to use the Epipen on him.

 Image may contain: one or more people and people sitting

So life will go on as it has been and we will keep food prepping and studying labels. Its amazing what is out there for people with food allergies-- for lunch Maks had macaroni and cheese. He eats pancakes and mash potatoes (not together) like its his job. And loves when I make him blueberry muffins. So its not a total pain in the butt, just have to be willing to put time and effort in. 

happy halfway to the weekend friends!

Sunday, February 19, 2017

Part of our long weekend

We are pretty excited about all this warm weather, and a long weekend with no set plans. So that means busting out a few projects at home & treating the boys to some fun.

Friday is our being lazy & grocery shopping day. Not a whole lot of people shop Friday nights so that's a win in my book! 

Saturday I finally decided to grab a shovel and get to work on this* project I've had pinned on my Pinterest for quite some time. Later we dropped Maks off for some one-on-one Jammy time (what they call my mother in-law) while we took the big boys out to a fancy dinner & ice cream. Jake ended up getting sick in Cold Stone's parking lot, but still managed to keep down some cotton candy ice cream with gummy bears.

Today Derek poured & leveled the concrete while Owen and I were at his first 4-H meeting. He had such a fun time playing and making new friends. He can't wait to go back to next month's meeting. I can't wait until he is old enough to show a calf! :)

Image may contain: outdoor

I've also been slowly rearranging the toy room and trying to decide how we should decorate this space. This* is my vision for one of the walls! Hoping to get the navy paint on the wall within the next two days.The stars and constellations will definitely be another weekend's project.  

 Image may contain: one or more people

Here's to unplugging for the next two days 
and taking as many sink baths as possible to fight off these colds.