Friday, June 23, 2017

Summer break so far

 I need to play catch up!

Baseball season is officially over. Owen's team played so well at their tournament. They kept up the whole game, but ended up losing by 3 points. So proud of all our little guys❤ We usually just play spring ball, but this year we are putting together a fall ball team. Derek had a meeting with the other head coach last night and practices should be starting come August.

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Dance has ended too. Jake had his recital the first weekend of June--it was pretty adorable!
My favorite was their ballet which was to the Beauty and the Beast song, Tale as Old as Time.
Jake & "his girls"

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Maks had a birthday! He turned two on June 9th. I made him some cupcakes & we celebrated out on our back deck. I knew his presents would be a hit because this boy loves the water!

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Owen finally got his hearing aids! It took us a couple weeks to get adjusted to having them & remembering to put them in everyday, but now everything is going well. We were initially scared of him losing them/falling out when we arent around, but they passed our test--jumping jacks, running, trampoline, swinging, wresting, etc. We also have this special clip thingy to put on them & him just in case they do decide come off. I'm sure I'll be making him use that more frequently once school starts because right now he is our most expensive kid!

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The first two weeks of June, the big boys went to day camp in our little village. They had the best time & even got to mark a few things off their summer bucket list.
Basketball camp is next!

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Maks is still in PT, OT, and speech. He is making us so proud with his hard work.
He can now:
•feed himself finger foods without help
•90% of the time use a fork the right way on his own (we have to stab the pieces for him)
•is more daring in moving out of 4 point (AKA crawling position--not crawling yet though)
•pronouncing mama, dada, lala, gaga, and bahbah 

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Now that our days have freed up a little, we are looking forward to grilling out, crossing things off our bucket list & roasting mallows over the fire.

But first, its tattoo time with my mom in-law!
xoxo

Thursday, April 27, 2017

Neurology update

I didn't want to leave all those that have prayed, sent well wishes & love to Maks hanging...so here is what we know now.

Last week we took him to children's for a three hour evaluation, which turned into four. He was with PT, OT, speech, psychology and neurology. Everyone did their own thing-- stretching, playing, talking, reading books and snuggling our little guy. Then they came and told us what they saw and how he did and where he's at age wise.
We knew he wasn't on the same level as a 22 month old but it stung a little to hear that Maks was equivalent to an eight month old. He has A LOT of catching up to do and that means increasing PT visits and starting OT and speech.

There is no official diagnosis of anything, yet. If at all (keeping our fingers crossed)
We have a MRI scheduled for June and a follow up visit in July. He had quite a bit of blood work done while we were there too. All of that was normal, just low on iron so we started to give him some vitamins until we can find an iron rich food he likes. Welcome to any ideas on that ;) 

We start speech and OT next week, along with our usual PT..and have to squeeze another PT in there somewhere. Then we just keep doing what we are doing until mid June. 

I posted this on my Facebook a few days ago...on our way home Florida Georgia Line's song came on and it really hit me right in the heart (picture big ugly crying crocodile tears, that was me) No matter what the outcome is for our little Maks, we love our rainbow baby just the way he is.


you better believe my love is
never gonna run dry,
never gonna come up empty
now until the day I die, unconditionally
you know I'm always gonna be here for ya
no one's ever gonna love you more than
God, your daddy, and me

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Wednesday, February 22, 2017

food allergy update

I could sooo get use to easy weeks like these. The boys had Monday off, Derek had until Tuesday off and can we talk about this perfect weather! 

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Tuesday we got Owen off to school & packed up  the rest of the gang to see the allergy doctor. It was prick test number two for mister Maks. This time he was tested for: cashews, oat, milk, egg, fresh milk, fresh egg, cats, dog, dust mites, and a few grasses and trees.
These allergies are so crazy--you guys, he showed up negative for dogs and cats! 
Remember little miss Luna we had? 

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He should of been okay with her. We are now wondering if it was her food that had an allergen in it to make him react when she licked his face. I guess we will never know....
That was the good news, for future dog purchases ;)  the bad news is those pesky eggs and dairy. I mean we knew that he still would react from them, but we had hopes that he improved slightly. 

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Nope. no improvement. In fact they gave us a prescription for an Epipen. 

So here is my PSA for the day: please do not give my sweet little babe any food/drink without asking Derek and I beforehand.  And pretty please don't think we are rude and snotty for asking you to wash your hands. We just really love our little Maks and never want to use the Epipen on him.

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So life will go on as it has been and we will keep food prepping and studying labels. Its amazing what is out there for people with food allergies-- for lunch Maks had macaroni and cheese. He eats pancakes and mash potatoes (not together) like its his job. And loves when I make him blueberry muffins. So its not a total pain in the butt, just have to be willing to put time and effort in. 

happy halfway to the weekend friends!
xoxo