Monday, March 5, 2018

I feel like we are due for a little in detail Maks update since we have so many of you praying & cheering him on!

In the past two months, we have been back up to Children's hospital for a neurology visit and a 24 hour EEG. 
The neurology visit was like ones in the past, 3-4 hours long, meeting with several people (speech, PT, OT, psychology, neurologist), and Maks showing them his new achievements. However this one ended with another diagnosis, which we weren't prepared for. We weren't even a half hour into the initial appointment before autism got thrown around. They listed a few characteristics of autism and wanted to test him at the end of our appointment. Us, not knowing anything about autism, agreed to the testing. We weren't too keen on how the test went/the length it took. Just to give you guys an idea, she handed Maks a baby doll (which he's never seen in his short life) and wanted him to throw baby a party. Think plate, cup, make a cake out of play doh, candles, singing...the whole nine yards. It wasn't happening, he was trying to figure out what that baby was! The whole test lasted about 15-20 minutes and a diagnosis was presented. All of Maks' therapists, who know him second best after us, disagree. We were also told if there was another underlying problem (his cerebral palsy), that the test shouldn't be done. So there's that..

Cerebral palsy and seizures kind of go hand in hand, so the EEG was checking out his brain activity for a "normal" day and sleep. We went into it with negative thoughts, but it ended up not being so bad. Derek and I got to eat some food from places we miss & Maks even took a nap! My back is still recovering from the awful pull out couch though. 

More big Maks news is coming!! We have a very important and exciting day Wednesday--stay tuned šŸ˜‰šŸ“ŗ


Tuesday, January 30, 2018

I will forever being tell you all thank you & loving all of your sweet messages and posts. Knowing we have such supportive friends and family really makes this journey a bit easier. So thank you for taking time out of your day to message us, ask how we are doing, praying, commenting on our Maks videos, and even "liking" a picture. It doesn't go unnoticed, especially on the tough days♡

Today we have another appointment at Children's Hospital in the neurology department. These particular appointments last between three and four hours long. Definitely not one of our favorite things to attend. Then add on any extra stuff (blood work, EEG, urine sample,...) and bam, we are there pretty much all day! Derek and I are hoping today has no surprise tasks after our appointment--keep your fingers crossed for us.

Speaking of appointments, guess what we are in the works of?
School for Maks. yeah I know. I can't believe it either, but it's happening.
I'm not exactly sure how I feel about it yet, so many mixed emotions. Scared, happy, worried, but excited. It helps so much knowing my mom in-law works there & Maks will be seeing his old (very first PT he had) therapist while he is there. Our meeting with the school is in the process of being scheduled, so we will know more soon!

Time to continue this busy week--next up on the list is trying out horse therapy!
I'm excited & hope he loves it.


Thursday, January 11, 2018

A year + some

I didn't even realize we are (way) past our one year mark of therapy!

This little gem showed up in my timehop today & I couldn't believe how much Maks has learned.
I still remember our very first PT session, so many tears and lots of screaming. We were simply working on tummy time & being able to hold his head up. The weeks after that were the same. Finally he was getting stronger and we were able to work on his four point stance (hands and knees, crawling position). A year ago that's where we were. As of yesterday he is learning how to walk using a walker. So much time, patience, and love in the past 365 days.
I wish I could capture every moment of therapy--Maks has really been crushing his goals lately & I've been coming home so excited to tell Derek. He usually asks if I got a picture or a video. Half the time my phone is playing music for Maks and the other half I'm living so much in the moment, it's buried in the diaper bag.

Here's to another great year at therapy Maks--you sure are one awesome, determined little babe.